National survey of carers of people with dementia

The University of York is conducting a ground breaking research project looking at the support carers get in different areas of England and how this affects them.

Do you care for someone with dementia? Do you live in one of the following areas? If so we would be very interested to hear about your experiences.

1.            Sunderland
2.            Rotherham
3.            Kingston upon Thames
4.            Shropshire
5.            Camden
6.            Stockport
7.            Swindon
8.            Leicester

9.            Bury
10.          York
11.          Croydon
12.          Salford
13.          Bristol
14.          Bracknell Forest
15.          Stockton-on-Tees
16.          Calderdale

Background to the research

Family carers are the most valuable resources we have in dementia care, yet we know very little about how best to support them. Different areas of the country offer different types and levels of service. We want to understand more about the support that carers get in different areas and how this affects them.
We’re running a survey of carers of people with dementia, asking what services they get and how they feel (in terms of their health, quality of life and so on). The study is being conducted by the University of York in partnership with Dementia UK, who run the Admiral Nursing service.

The findings of the survey will be fed back to the government and published widely so that the people who plan and provide services for people affected by dementia have better evidence about how to support them.

How can you help?

If you are a current carer of someone with dementia and you live in one of the above areas please consider completing the questionnaire, either online (follow this address or on paper (please contact for a paper copy of the questionnaire).

What do we mean by current carers?

We are looking for current carers of people with dementia, which we are defining as carers of people still living at home (i.e. their home or yours, or supported housing, but not residential care or a nursing home).

For more information or to find out more about how you can get involved in this research please contact or call Kate on 01904 321988/ 07812 438446