Carers stories:

Here at tide, we want to change the way carers are recognised, valued, and treated. It is our mission to ensure that the needs of these carers are recognised and valued by absolutely everyone. We believe in the power of sharing carer’s stories, so everyone can understand the skills that looking after someone with dementia includes. Our carers are experts by experience and their voices and stories need to be heard.

How to tell your story?

You can share via a written piece, a poem, a story or simply film yourself on a phone. We can also set up a recording session via Zoom.

For more information email vicki@tide.uk.net 

Shouldn’t he be in a care home?

“What? Your Dad has Dementia & Lives at Home on his own? Shouldn’t he be in a Care Home?’I cannot count the number of times I’ve heard this question!”

I was listening to the Radio..

I have no control in Frankie’s care now but I travel once a week to the nursing home to leave him his favourite treats

Guidelines no more!

In response to the new government guidelines on Care Home visits Doreen Russell has shared her story

My COVID Story

Liz’s experience of the lockdown with her  husband Frankie who has dementia with Lewy bodies.

Who cares for the carers?

The government knows that unpaid carers are saving billions, but what are they doing to protect them? – Nothing!

Lockdown Blog

This blog was written by Mary Mitchell, a tide carer member in Wales.

Ruth’s Story

Ruth shares her story as a member of  the Dementia Carers’ Expert Reference Group (DCERG)

Roger’s Story

Roger shares his story about his wife’s recent visit to hospital.

Lynn’s Story

Lynn Gamble shares her story at National Dementia Action Alliance event.

Ruth’s Story

How the integration of hospitals and care home services can better facilitate the transfer of care.

Ansa’s Story

As part of our Dementia Dekh Bhaal body of work in Rochdale, Ansa shares her experience of caring for someone with demantia, as part of the South Asian community.

Dewan’s Story

As part of our Dementia Dekh Bhaal body of work in Rochdale, Dewan shares their experience of caring for someone with demantia, as part of the South Asian community.

Tahir’s Story

As part of our Dementia Dekh Bhaal body of work in Rochdale, Tahir shares their experience of caring for someone with demantia, as part of the South Asian community.

Ann’s Story

Ann shares her journey with dementia, the reality of being a family carer and the changes she thinks need to be made to support carers more.

Julia’s Story

Julia reflects on how life has been for her family since her mother was diagnosed with vascular dementia, touching on her own health and well being, the care her mum has received and the impact of caring on her life.

Ray’s Story

Ray talks candidly of the impact for her and her family.

Shahid’s Story

Watch Shahid’s reflections on caring for his mother, who lived with vascular dementia. Shahid touches on the cultural and religious expectations on him to care, and the experiences of BME carers.

Ming Ho’s Story

Ming Ho tells of the inspiration behind “The Things We Never Said”

Frank’s Story

This is the manuscript for a speech tide member and supporter Frank Arrojo gave at the Alzheimer’s Show in 2017.

Roy’s Story

Roy talks to us about what it’s like when a partner with dementia dies

Anonymous Carer’s Story

This was a speech given by one of our members at a recent influencing opportunity, they wanted it to be shared anonymously