Carers stories:
Here at tide, we want to change the way carers are recognised, valued, and treated. It is our mission to ensure that the needs of these carers are recognised and valued by absolutely everyone. We believe in the power of sharing carer’s stories, so everyone can understand the skills that looking after someone with dementia includes. Our carers are experts by experience and their voices and stories need to be heard.
How to tell your story?
You can share via a written piece, a poem, a story or simply film yourself on a phone. We can also set up a recording session via Zoom.
For more information email vicki@tide.uk.net
Lesley’s Story
Lesley, tide’s vice chair, tells us about her caring role and how she started a community group to provide support for unpaid carers
Joe’s Poem
Joe sent in a new poem to tide for World Poetry Day 2021. Have a read!
Joe’s Story
Joe talks about how sharing his poetry with tide gave him the opportunity to enrol on a creative writing course and the confidence to continue to share his story
Caroline’s Story
Caroline talks about caring for her aunt and how tide has helped her in her caring journey
Hazel’s Story - Life as a carer during the pandemic
Hazel talks about how her life as a carer has changed since the pandemic.
Mary’s Story - Pandemic Winter 2021
Mary writes about her husband Mike and what has taken place since the pandemic began.
Linda’s Story - at the beginning
Linda regularly writes about her journey, this is when her husband Ken was first diagnosed with dementia.
Ray’s Story
Ray shares her story in this film about her life after her husband started showing signs of dementia at the age of just 50.
A poem about young onset dementia
Linda shares her poem about her life and what young onset dementia means to her
MY MUM AND ME. Cos that’s how it was.
Judy shared her story at the event ‘Carers Rights in Northern Ireland: during and beyond the pandemic’ organised by the Coalition of Carer Organisations.
Linda’s poem for Christmas
A 2020 Christmas
Shouldn’t he be in a care home?
“What? Your Dad has Dementia & Lives at Home on his own? Shouldn’t he be in a Care Home?’I cannot count the number of times I’ve heard this question!”
I was listening to the Radio..
I have no control in Frankie’s care now but I travel once a week to the nursing home to leave him his favourite treats
Guidelines no more!
In response to the new government guidelines on Care Home visits Doreen Russell has shared her story
The Power of Writing
Linda tells us about the power she felt from writing her blog
Poetry from carers in Wales
Carers from Wales express their thoughts through poetry.
Has Wimbledon been on already? Bernard’s Story
I also hope you will all understand that I am not medically trained but, I am an expert on my wife and her condition…
My COVID Story
Liz’s experience of the lockdown with her husband Frankie who has dementia with Lewy bodies.
Frankie and the Wave
A poem by Liz
A visit to my husband
Mary Mitchell lockdown blog
Veneer - A poem
By Mary Mitchell
The Covid Chronicles Part 2
Liz continues her story with life during lockdown
Jackie’s Story
How the Covid – 19 lockdown affected Jackie and her husband.
Natasha’s Story
Covid, care homes and lockdown. I am unable to see my mum.
Who cares for the carers?
The government knows that unpaid carers are saving billions, but what are they doing to protect them? – Nothing!
Lessons in Lockdown – by Louise Houghton
I knew that the social care system was struggling, but I always took for granted that there would be a safety net in a large-scale emergency like this. There isn’t.
BAME carers – locked in
A blog by Shahid Mohammed, BAME carer involvement lead at tide.
Lockdown Blog
This blog was written by Mary Mitchell, a tide carer member in Wales.
We’re all after the same rainbow’s end
This blog is written by Paul Marlow, who cares for his mum.
The Covid Chronicles
No-one is talking about unpaid carers, because no-one knows what to say.
Ruth’s Story
Ruth shares her story as a member of the Dementia Carers’ Expert Reference Group (DCERG)
Roger’s Story
Roger shares his story about his wife’s recent visit to hospital.
Lynn’s Story
Lynn Gamble shares her story at National Dementia Action Alliance event.
Ruth’s Story
How the integration of hospitals and care home services can better facilitate the transfer of care.
Frank’s Speech at the Alzheimers Show
Frank Arrojo tells his powerful and touching story of the time he spent caring for his late mother who lived with dementia.
Ansa’s Story
As part of our Dementia Dekh Bhaal body of work in Rochdale, Ansa shares her experience of caring for someone with demantia, as part of the South Asian community.
Dewan’s Story
As part of our Dementia Dekh Bhaal body of work in Rochdale, Dewan shares their experience of caring for someone with demantia, as part of the South Asian community.
Tahir’s Story
As part of our Dementia Dekh Bhaal body of work in Rochdale, Tahir shares their experience of caring for someone with demantia, as part of the South Asian community.
Ann’s Story
Ann shares her journey with dementia, the reality of being a family carer and the changes she thinks need to be made to support carers more.
Natasha’s Story
Natasha – The Identity I Didn’t Ask For
Dana’s Story
Dana – I Was His Angel, Now He’s Mine
Julia’s Story
Julia reflects on how life has been for her family since her mother was diagnosed with vascular dementia, touching on her own health and well being, the care her mum has received and the impact of caring on her life.
John’s Story
Who cares for me?
Ray’s Story
Ray talks candidly of the impact for her and her family.
Shahid’s Story
Watch Shahid’s reflections on caring for his mother, who lived with vascular dementia. Shahid touches on the cultural and religious expectations on him to care, and the experiences of BME carers.
Ray F’s Story
This Is Me – Ray Fallan
Rachael’s Reflections & Story
Rachael reflects on her experiences as a young carer of her Nan, who passed away in 2011.
Moyra’s Reflections & Story
Moyra reflects on her experiences as as a carer of her mother.
Janis Cottee’s Story
Janis Cottee, speaking on behalf of tide at UK Dementia Congress.
Steve’s Story
Steve – My Next Step.
Ming Ho’s Story
Ming Ho tells of the inspiration behind “The Things We Never Said”
Moyra B’s Story
Moyra reflects on a carers experience.
Alison’s Story
Alison – Losing and Finding “Me”
Sue’s Story
Sue – Honouring Mums memory
Frank’s Story
This is the manuscript for a speech tide member and supporter Frank Arrojo gave at the Alzheimer’s Show in 2017.
Roy’s Story
Roy talks to us about what it’s like when a partner with dementia dies
Watch Lesley Perkins and Nicola Winship on BBC
Lesley Perkins and Nicola Winship share their stories with BBC North West Tonight.
Sue’s Story
Sue – Baz and I.
Anonymous Carer’s Story
This was a speech given by one of our members at a recent influencing opportunity, they wanted it to be shared anonymously
