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“Caring is a bit like the pieces of a jigsaw puzzle, the pieces symbolize the challenges that carers face on a daily basis, some larger and awkward, while others are corner pieces that fit perfectly. tide is the physical building together of the jigsaw, interlocking all the disconnected pieces, when assembled produce a complete picture" 

- tide member and wife of someone with dementia

We believe that carers and former carers have the experience and knowledge to improve health and social care, research, and policy development throughout the UK.

Coffee Morning

Carer's Coffee Morning

Informal get-togethers to meet and chat with other unpaid carers

Focus Groups

Carer's Focus Groups

Meet and discuss with people who share similar experiences to you

CDP

Carer Development Programme

You can learn the skills and confidence to stand up for your rights

CSR

Corporate Sponsorship

Work with us to transform carer's lives

resrouces (2)

Carers Resources

Resources for carers from past tide projects

Latest Newsfeed

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making-shared-care-a-reality

Making Shared Care a Reality – Resource Launch

As we move into the next phase of the “Shared Care” initiative, we are proud to announce the official launch of the Making Shared Care a Reality – Resource for Care Home Staff.

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TIDE Champions Carers’ Voices at UCL’s SPIN‑D “Getting Real About Co‑Production” Workshop

In early July 2025, tide made a significant impact at UCL‑East Stratford during the SPIN‑D Festival of Science & Arts—“Let’s Talk Dementia: Fiction, Fact and Hope” As part of the "Getting Real About Co‑Production" workshop, TIDE representatives delivered compelling sessions titled “Involving carers in research” and “Shared Care”.

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Upcoming events

Mar23

Young Onset Carers Group

Each month we hold meet ups to enable specific groups of carers to meet up virtually and discuss topics related to their experiences as carers.

Caring for someone with young onset dementia has a lot of issues unique to this diagnosis. This can often lead to finding carers groups aren’t suitable or lacking the support of someone with similar experiences and feelings. This leads of people feeling isolated and alone in their experience. It is important for carers of people with young onset to have access to information and advice that is specific to them. This group allows you to connect with others who do share this experience and understand the unique challenges in caring for someone with young onset dementia.

WHEN? The fourth Monday of the month at 7PM – 8PM.

You can register via the Book Now button. You will receive a confirmation email with the Zoom link. Please contact carers@tidecarers.org.uk if you have any questions.

You can register via the Book Now button. You will receive a confirmation email with the Zoom link. Please contact carers@tidecarers.org.uk if you have any questions.
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Mar24

Purposeful Activity in Practice

You will learn more about how activities at home can help the person you care for feel safe, settled and more comfortable. Read more

Mar25

Former Carers Group

Are you a former carer? Come join our group of friendly former carers for our online peer support group

Peer-to-peer support is so important, it often feels like no one else really understands what you are going through as a carer. This group gives you the chance to meet with other carers who share similar experiences with you.

When the caring comes to an end, you may feel a bit lost and unsure what to do. As well as informing each other with friendly advice, the group offers an opportunity to share your experiences with others who have gone through something similar and who understand. If you are interested, you can also hear about how you can be more involved with opportunities to influence and create fairer dementia policies.

You can register via the Book Now button. You will receive a confirmation email with the Zoom link. Please contact carers@tidecarers.org.uk if you have any questions.
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1 million

Nearly 1 million people live with dementia in the UK

540,000–670,000

Around 540,000–670,000 unpaid carers support people with dementia

£42 billion

Dementia costs the UK around £42 billion annually—over 60% borne by families

Luye pharma has provided a financial grant of £10,000 to support the operation of tide in advocating for improved dementia pathways and services