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Crowded Isolation and Loneliness

Carers don’t need pity they need help


A new report has been launched by carers of people with dementia and tide – together in dementia. Carers came up with the idea for a survey after conversations during tide carer connection sessions, about their roles as carers and how the isolation and loneliness of being a carer affects them.  The survey picked up themes and made a  list of recommendations to improve the lives of carers of people with dementia. The report with recommendations was launched at an event hosted by carers and includes a short film and an animation reflecting the reality of caring.

Many carers reported on the detrimental impact of caring on their own physical and mental health and the difficulty of taking time to look after their own needs. Some said that the all-consuming role of caring had resulted in the erosion of their own personal identity. Carers experienced a pervasive feeling of guilt, that they were never doing enough or being enough.

 We believe in a society where family and friend carers of people with dementia use their voices and society reflects and responds to their unique carer rights. We hope this report goes some way to making that happen.

You can watch the video, animation and access the report here.

Dementia is a health care issue, they call it social care, which is unfunded compared to the NHS, this needs root and branch reform. Critical that dementia care is funded by the government. Nothing less should be tolerated as a point of principle.

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