At the end of November 2018 he had another seizure. I don’t think the carers had seen one before – and like me when they saw it they feared the worst. They rang 999 and he was taken to our local hospital. Eventually they said he was going for assessment to Elderly care unit. Here they checked that he could mobilise. Once off the bed he wouldn’t sit down so it was hard for the doctor to do the checks needed.
The doctor then said he should stay on the new tablet and the donepezil but come off the clopidogrel and the atorvastatin. I asked why as they were to prevent further strokes. Quality of life the doctor said with a bit of a shrug.
The care home notifies the GP of the situation but they don’t want to come to do a medication review as it’s not due until May. GP is rung again and does come out but over rules hospital doctor and says to stay on all medication. “for now” – perhaps, he says, if he was 80 he’d stop it.
Key points for me –
o Why would one doctor say stop and the other carry on with clopidogrel and atorvastatin – neither wrong probably but which one is right or what is best? There was no real discussion of this – no explanation to me – I want to know, I want to understand (whatever and however bad it may be) – complex vascular issues? I was excluded from the medical aspects.
o Let carer straight into A&E
Follow up – very limited in several respects:
o He wasn’t allowed the 6 weeks rehabilitation after the stroke or the first seizure – after the stroke in particular – because of his dementia and because I “do too much for him”
o No follow up on his Alzheimer’s and vascular dementia whatsoever
o Things said to me that at time you can’t take it all in – need someone to pull it all together
To end on a positive note both Rick and Mom are in lovely care homes. I cannot fault the staff; management; carers; cleaners; who go above and beyond. For them it’s not just a job – they care. Both are settled, happy. Both homes are pleasant and lively, welcoming and supportive of me. Care homes get a bad press but there’s lots of good out there. And lots of NHS staff and others working their socks off.