One Dementia Voice

The campaign 
tide united in One Dementia Voice to call on the Government to avert hidden catastrophe – allowing family carers to visit Care Homes.

tide worked in partnership with Alzheimer’s Society, Alzheimer Research, Dementia UK, Innovations in Dementia, John’s Campaign and YoungDementia asked the government for Key Worker Status to be granted to a family member to allow them to visit relative in Care Homes. You can read the statement here. 

Update 

John’s campaign have released the latest guidance on care home visits following their legal challenge – read here

The government has released the latest guidance on how care homes and visitors can prepare for visitor testing with lateral flow devices:   visit website

This includes a visitor testing guidance pack: download pdf

New guidance has been issued on the 1st December allowing for meaningful care home visits in England. Read the statement here

A live parliamentary debate was secured on 12th November, you can watch it here. 

The pilot scheme on giving Key Worker status to one family member is to be rolled out during November and at the end of the debate, Debbie Abrahams MP asked Helen Whately (Minister for Care) to make a statement to the House by the end of the month with an update on the care home visits pilot.

The message 

With one united voice, we’re calling on the government to grant family and friend carers the same Key Worker Status as care home members of staff. This will allow them the same access to care homes ,with the same coronavirus testing, so they can meet the essential needs of residents.

Add your voice to the campaign  – Join Us

Update

The campaign received a lot of press coverage, yet still, there is no response from the UK Government.  tide support Johns’ Campaign who are part of #OneDementiaVoice in seeking a judicial review; Government Guidance Has Failed Care Home Residents And Their Families

“For months now we have been hearing stories of suffering. Only as a last resort have we taken this step. We believe that the government guidelines have spread chaos and caused avoidable suffering and that a fundamental violation of human rights is happening on a mass scale. Time is precious; every day counts to those people in care homes and to their family, for whom enforced separation has brought damage, bewilderment, and anguish.”


Write to your MP to demand action be taken: 

England

Scotland

Welsh

Northern Ireland


Press Coverage
The campaign gave tide members the opportunity to share their stories across the UK media:

The newspapers who shared the story included the Daily Mirror, Telegraph, Sky, MSN, Daily Mail, Care Home Professional, Care Home Environment, Care Home, The Carer UK, LaingBusson News, Access and Mobility Professional, Med Scape, LBC, Heart, Smooth, Gold Radio, Capital FM, Love Sports Radio, Radio X, Televisor, Young Dementia UK ,  Yahoo, The i, BBC News, The Guardian  and Evening Standard:

The Guardian

BBC News

Daily Mail

The Standard

The Standard 2nd article

i news

The Independent

The Guardian 2nd article

MSN

Broadcast coverage:

Treat family of dementia patients like key workers: Charities call for relatives to get regular Covid tests so they can see vulnerable care home residents and prevent a ‘hidden catastrophe’ Daily Mail 09/07/2020

Families are finally set for reunions with their elderly relatives after Matt Hancock says ban on care home visits will be lifted ‘in the coming days’ Daily Mail 10/07/2020

Coronavirus: Dementia patients ‘deteriorating’ without family visits BBC 09/07/2020

It’s time to finally give our care homes the resources they deserve Telegraph 10/07/2020

Families to be able to start visiting relatives in care homes in England again Mirror 10/07/2020

Call to treat relatives of dementia patients like key workers Guardian 10/07/2020

Coronavirus latest: treat relatives of dementia patients as key workers, charities demand iNews 10/07/2020

Coronavirus: Treat relatives of care home residents with dementia as key workers, charities say Independent 10/07/2020

Coronavirus: ‘Nervousness’ as ban on families visiting care homes set to be relaxed Sky News 10/07/2020

Care home visits to resume this month Telegraph 10/07/2020

Coronavirus in Scotland: ‘I wonder if I’ll ever get to hug my mum again’ BBC 14/07/2020

News bulletins across national and regional radio on 10/07:

BBC Radio 2, Radio 3, Radio 4, Radio 5 live, Radio 6 Music, LBC & 46 regional BBC Radio stations (headline bulletins: Devon, Sheffield, Cumbria, Leicester, Manchester, Wiltshire, Lincolnshire, Hereford and Worcester, Essex, Berkshire, Guernsey, Wales, Shetland, Coventry & Warwickshire, Cambridgeshire, Tees, Oxford, Ulster, Bristol, Shropshire, WM, Three Counties, Jersey, Newcastle, Northampton, Norfolk, Sussex, Lancashire, Leeds, Nottingham, Solent, York, Highlights and Islands, Somerset, Foyle, Kent, London, Cornwall, Orkney, Derby, Gloucester, Surrey, Merseyside, Stoke, Humberside, Suffolk)

Kate Lee on Jeremy Vine listen online here (whole segment on ‘One Dementia Voice’ between 9:04 and 33:00 – Kate Lee interview 15:00-19:55)

Fiona Carragher on SkyNews

Jackie on Channel 4 news https://twitter.com/AnnaLSN/status/1281884741248200704

Anna & Natasha on Sky news https://twitter.com/AnnaLSN/status/1281726034447130624

Jean on Sky news https://twitter.com/SkyNews/status/1281533777676775425

Natasha on Sky News https://www.facebook.com/watch/?v=3488821257873360&extid=BbiSBnaa0wyMqlEa

Natasha on Radio 5 Live:


The result

Some guidance was issued by the government: visiting in care homes

However, the Key Worker Status request has been ignored and we are still hearing from our carers that not enough is being done. We will continue with this campaign.