View navigation

TIDE - Together In Dementia Everyday uses cookies to ensure that we give you the best experience on our website. For optimal performance please accept cookies. For more information please visit our cookies policy.

Accept and close

About us

Janis Cottee

tide Advisory Group Member 

About Janis…

I cared for my husband who had young onset dementia. I became a member of tide back in 2015. Since 2016, I have been part of tide's Advisory Group. tide offered me an opportunity to speak at the opening Plenary at Dementia Congress, so I took it. I spoke to 500 professionals with the aim of improving their understanding and helping to change their attitudes towards people with dementia and their carers. I felt it was so important for professionals working in Health and Social Care to hear from unpaid carers about their struggles. As a bonus, it also gave me the biggest boost to my confidence I've ever had. 
What I found, when telling my story, was that when people empathised with my experiences it validated all the things I was feeling, whether that be frustration, exhaustion or grief. I think every carer needs this. The experiences of unpaid carers are too often overlooked or dismissed. I always emphasise the point that a dementia diagnosis is given to the whole family and that the carer is an expert by experience and a partner in care. We should be recognised as such.