tide at Christmas and New Year
23 Dec 2020
2020 has certainly been a year like no other! We would like to wish all our carers a peaceful Christmas and New Year.
We’re recruiting in Northern Ireland!
15 Dec 2020
If you applied for the Carer Involvement Lead job for Northern Ireland, you may have received a bounce back on the application form email address. Please resend your application form to Pauline@lifestorynetwork.org.uk
tide: The power of connection
14 Dec 2020
The UK-wide charity tide (together in dementia everyday), brings together carers of people living with dementia to share their stories – as experts by experience – to influence positive change. Their work not only connects people to talk about key issues but it enables carers to gain the knowledge, skills and confidence to share their voices with key decision makers in Health and Social Care.
Human Rights Day - a letter to the Prime Minster and political leaders
10 Dec 2020
On global Human Rights Day 110 groups from across the UK issue an open letter to the Prime Minister and political leaders, urging them to respond proportionately to Covid-19, protect people’s rights and the rule of law, and to stand by the Human Rights Act
Tip Share - a new website launched for people with dementia
8 Dec 2020
New website launched called Tip Share
Vaccination roll out to care homes - 4 December 2020
7 Dec 2020
The Department of Health and Social care have written to care homes [for older adults], local authority chief executives and directors of adult social services about the roll-out of the Vaccination programme.
We are recruiting - 4 new jobs
23 Nov 2020
We are recruiting! We have four exciting jobs on offer for people who want to join a dynamic, collaborative and supportive team. We recently revised our structure to provide the right focus on delivering our National Lottery funded programme and building a sustainable future for both Life Story Network and tide. All posts will be on fixed term contracts up to October 2021, with the potential for extension once sustainable funding is secured. We are open to secondments and welcome discussions with partner organisations.
Chief Executive of tide in the Journal of Dementia Care calling for Key Worker Status
13 Nov 2020
Our Chief Executive Anna Gaughan is in the Nov/ Dec issue of the Journal of Dementia Care. Writing about the ongoing call for carers to be given Key Worker status, the article shares what carers have been telling tide about how they have been treated during the pandemic.
Free Flu Vaccine - find out if you are eligible
6 Nov 2020
Those who are in receipt of a carer’s allowance, or who are the main carer of an older or disabled person whose welfare may be at risk if the carer falls ill are entitled to a free flu vaccine.
What do carers think of the new visiting guidelines for Care Homes?
5 Nov 2020
Week after week we are hearing stories from carers about how they have not been able to visit someone in a care home due to restrictions put in place for Covid 19.
Trustee Week 2020
4 Nov 2020
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Pioneering training resource is a finalist in the National Dementia Care Awards 2020.
4 Nov 2020
PRESS RELEASE
tide carers speak out in Northern Ireland
22 Oct 2020
This week we have two articles about the ongoing lack of visitation rights for carers in care homes in Northern Ireland.
Dementia Congress 2020
21 Oct 2020
This year's Dementia Congress is a virtual event, giving you the opportunity to attend any of the sessions online.
Job Alert - Learning and Development Coordinator
20 Oct 2020
Are you passionate about carers of people with dementia having their voices heard – we are!
Job Alert - Admin Officer Scotland
20 Oct 2020
Are you passionate about carers of people with dementia having their voices heard – we are!
We are working with Irish in Britain on their 'Cuimhe Carers' Project
13 Oct 2020
Irish in Britain is delighted to be running this new project to support family, friends and volunteers caring for people living with dementia. With support from the Race Equality Foundation, we are particularly targeting people from Irish and BAME communities, but the project is open to all.
South Asian Carers of People with Dementia during Lockdown
13 Oct 2020
You can now access our report on how tide supported carers of people with dementia during the lockdown in the South Asian Community.
Dementia Friendly Hospital Charter just as relevant today during the pandemic
9 Oct 2020
An update from Frank Arrojo, Carer representative, NDAA Dementia Friendly Hospital Taskforce
Update on policies for visiting arrangements in care homes
6 Oct 2020
A Summary Guide for Carers
New campaign to reach more carers of dementia
1 Oct 2020
tide have launched a new campaign to reach more carers of people with dementia. We understand the importance of sharing stories. tide member Ray Fallen, whose story inspired the Living Grief campaign has spoken about her experiences as a carer of dementia
Carers speak frankly about how their legal rights have been affected by the Coronavirus Act 2020
29 Sep 2020
Law 4 Dementia Care (L4DC) is a partnership project between the Life Story Network/tide and Making Space, funded by The Legal Education Foundation whose aim is to raise the awareness and knowledge of the legal rights of carers of people with dementia. Everyone’s life has been affected by the pandemic, for carers, this has been devastating.
Caring from a Distance: using new and familiar means of keeping in touch with family and friends in care homes during COVID-19
18 Sep 2020
The closure of care homes to visitors in response to the coronavirus pandemic means that many people have been unable to visit family and friends living in care homes. For many people this means they may have tried using new ways to keep in touch while they are apart.
Research Study Results - Covid 19 and carers of people with dementia
17 Sep 2020
Thanks to all our members for taking part in the research and to Jean Tottie Chair, Ruth Eley Vice-Chair and Anna Gaughan, Chief Executive who co-authored the first COVID 19 research paper on the impact on carers of people with dementia.
Northern Ireland Update
17 Sep 2020
Fiona, Carer Involvement Lead in Northern Ireland has been collecting evidence on how the lockdown has affected carers.
An Update from tide in Scotland
14 Sep 2020
We’ve been working hard at tide in Scotland. August has been a busy month for us. Please take a look at our newsletter to find out what we have been up to and what opportunities we have available by clicking here.
Let's Talk About Dementia - Big Coffee Morning
9 Sep 2020
Who: Suitable for carers of people with dementia.
Carer Development Programme - Online Learning
7 Sep 2020
We would like to invite you to join one of our workshop sessions online and hope that you will enjoy meeting and connecting with other tide carer members as well as taking part in activities where you will learn more about tide and have the opportunity to expand your own skills and knowledge. We are pleased to introduce 2 new sessions this time. All are free to join, email Amanda@tide.uk.net to book
Carers Chat - for unpaid carers of dementia now in residential care
4 Sep 2020
Join our carers zoom chat for carers of people with dementia who are now in residential care on Tuesday 8 September 2 - 3pm.
Taking Part in Research - what you need to know!
3 Sep 2020
Join us for an informative session about taking part in research in our Zoom Q & A Session on Wednesday 23rd September, 1.30 – 2.30pm
My Dad and Me: Caring for someone with dementia and sight loss
1 Sep 2020
Join TAG (Tide Advisory Group), Member Celia who will tell her story about caring for someone with dementia and sight loss. On Tuesday 15 September 10am.
Opportunity to inform the Scottish parliament what affect COVID - 19 has had on you as a carer
28 Aug 2020
This is your chance to inform the Scottish parliament how the COVID-19 pandemic has impacted on social care services at home. We are working with the Scottish Parliament Health and Sport Committee and Alzheimer's Scotland.
tide launches first ever fundraising challenge!
27 Aug 2020
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Carers from Wales share their poetry
26 Aug 2020
As part of the Gwynedd Carers Network virtual Carers Festival, tide members from Wales shared some of their poetry. Carers Joe, Mary and Sue share their poetry. Carer Involvement Lead Sarah Merriman shares her story and poem.
The NAPA Activity Awards 2020 – Featuring the NAPA Choir!
24 Aug 2020
The care sector has experienced an abundance of new challenges in 2020. We are determined that now, more than ever, the dedication of our members, to continue to prioritise the wellbeing of the people they support, must be rewarded.
Are you a carer of someone with dementia and live in Manchester?
23 Jul 2020
The Dementia Carers Expert Reference Group (DCERG) is the first every commissioned carers group in the UK. It consists of a group of current and former carers of people with dementia who are passionate about improving the lives of carers of people living with dementia and those they care for across all Greater Manchester.
Together in Dementia Everyday (TIDE) continues to strengthen the voice of carers with the appointment of new charity trustees
23 Jul 2020
We are delighted to announce the appointment of four new trustees to further strengthen our board and help shape tide’s work as it enters its first year operating as a charity.
Life After Death -Charities call for new deal for carers in Scotland
23 Jul 2020
We are pleased to have supported a collaboration between Marie Curie, Sue Ryder and the Reform Scotland think tank in producing a new report which calls for major changes in the support offered to carers after the person they have cared for dies. The report, Life After Death - supporting carers after bereavement recommends 5 policy proposals:
Call for stories
22 Jul 2020
You might have seen us share our work on the feelings of loss and grief carers of people with dementia can experience throughout and after their caring journey. We are now working on a follow up project that looks at how these feelings and experiences have been affected by COVID19 and the lockdown measures.
Law for Dementia Carers Covid-19 survey - have your say
17 Jul 2020
This survey is requesting feedback from carers on the impact that legal issues are having on carers of people with dementia at this current time.
Write To Your MP about granting Key Worker status to family and friend carers
14 Jul 2020
Dementia Organisations have come together to speak as One Dementia Voice on the urgent need for the Government to move forward to enable Care Homes to feel safe in allowing visits to their residents. We want the Government to:
Health, Social Care and Sport Committee COVID inquiry report
14 Jul 2020
Tide responded to the Welsh Parliament’s Health, Social Care and Sport Committee’s inquiry into Covid 19 by sharing anonymised views of carers who had taken part in the tide Covid-19 survey and the views of carer members who had contacted us directly. In particular, carers had commented on: visiting restrictions in care homes, lack of PPE, correspondence from Welsh Government and available information, paid care, shopping and loneliness.
Dementia organisations united in One Dementia Voice call on Government to avert hidden catastrophe - allowing family carers to visit Care Homes
10 Jul 2020
Letter to the Government about Care Homes
10 Jul 2020
One Dementia Voice, the UK’s leading dementia organisations, welcome the decision from the Government in response to our letter below to start to safely reopen care homes to visitors.
An Update from tide in Scotland
8 Jul 2020
We've been working hard at tide in Scotland and Northern Ireland. Please take a look at our newsletter to find out what we have been up to and what opportunities we have available for carers.
Barbara Pointon MBE - an advocate for the carer's voice
1 Jul 2020
I am truly saddened to hear about the death of Barbara Pointon MBE.
tide carers given a voice in global action plan on public health response to dementia
25 Jun 2020
Here at tide, we give a voice to carers of dementia. We were delighted to be invited to submit a spotlight feature as an example of good practice on how a UK wide charity is committed to ensuring that the challenges faced by carers of people with dementia are highlighted.
Dementia UK launches new awareness campaign
24 Jun 2020
Lives on Hold, Dementia UK’s new awareness campaign, launched online on 15 June. Dementia UK wants to ensure that everyone who needs it has access to the vital support that their dementia specialist Admiral Nurses can provide.
Law 4 Dementia Carers - Online Webinar
18 Jun 2020
Together in Dementia Everyday (TIDE) and Making Space, working with the Justice Hub at the University of Manchester would like to invite carers of people with dementia to join our online Zoom webinar:
We're Hiring! Regional Carer Involvement Lead (Scotland)
17 Jun 2020
Are you passionate about carers of people with dementia having their voices heard – we are!
The impact of COVID-19 on carers in Northern Ireland
12 Jun 2020
A statement by the Coalition of Carers Organisations NI
Who will hold the government to account for emergency legislation that is passed during the time of Covid 19?
12 Jun 2020
With emergency legislation needed as the world fundamentally changes in order to cope with the COVID 19 pandemic, the more we lose some of our fundamental rights already protected by law.
‘Making Caring Visible’ this Carers Week
8 Jun 2020
During Carers Week 2020 Together in Dementia Everyday (tide) is inviting health and care services, schools, employers and businesses across the community to recognise the vital contribution made by unpaid carers.
Life Story Work in Lock down
27 May 2020
Lockdown has been challenging for us all. Particularly for people who are looking after someone. Life Story Network have developed a resource to support those who care and who are cared for.
The holding of loss
22 May 2020
A blog written by Fiona McMahon, Carer Involvement Lead in Northern Ireland
"We're all after the same rainbow's end"
18 May 2020
This blog is written by Paul Marlow, who cares for his mum.
Make a difference to carers of people with dementia and apply to become a trustee
1 May 2020
tide became a registered charity in December 2019. We are now looking to appoint trustees with backgrounds and experience in Marketing and Fundraising, Human Resource Management, Finance and Business acumen. However, we welcome interest from anyone who is interested in our work and can meet the requirements of being a trustee.
Lockdown blog
1 May 2020
This blog was written by Mary Mitchell, a tide carer member in Wales.
We're Hiring! Strategic Fundraising Manager (Scotland)
29 Apr 2020
Are you passionate about carers of people with dementia having their voices heard – we are!
BAME carers - locked in
21 Apr 2020
A blog by Shahid Mohammed, BAME carer involvement lead at tide
New dementia study to explore impact of COVID-19 social services cuts
21 Apr 2020
tide are pleased to be supporting the University of Liverpool who are leading a new COVID-19 study to explore the effects of social service closures on the lives of older people, people with dementia and unpaid carers.
Covid-19 dementia social care study
3 Apr 2020
Covid-19 national social service closure study
tide's Chief Executive on BBNW News
3 Mar 2020
Our Chief Executive Anna Gaughan was on BBCNW news on Wed 19th February. She was interviewed along with carers Liz and Mike Brooks who were talking about the undervaluing of carers of people with dementia and just how much one carer saves the NHS and government. The interview was part of Alzheimers' Society campaign to Fix Dementia Care
Living Grief and Bereavement - an introduction by Amanda McCarren
27 Feb 2020
Amanda McCarren, Head of Development and Lead for Scotland and Northern Ireland, tide – Together in Dementia Everyday was invited to speak at the #NESBereavement2019 conference in Scotland.
Law for Dementia Care Survey
24 Feb 2020
Law for Dementia Carers (L4DC) is a two-year project funded by a grant from the Legal Education Foundation to tide. The project is being carried out as a pilot in Greater Manchester, supporting Dementia United’s aim “to make Greater Manchester the best place in the world for dementia care. There are many gaps in care and support for carers of people with dementia including access to wider social welfare and legal support which are taking a toll on families’ health and finances. The focus of L4DC is to provide legal, including human rights, information for carers of people with dementia by developing training modules that carers can access.
We are Hiring! - Regional Carer Involvement Lead (Scotland)
27 Jan 2020
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Carers of people with dementia given new hope as tide announces charity status
21 Jan 2020
Changing lives through sharing stories is just one of the founding principles behind tide, together in dementia everyday who are delighted to have been awarded charity status. Dementia is a growing health crisis, with someone developing dementia every 3 seconds. In the UK there are 850,000 people living with dementia, supported by family or friends who take on the role of carer.
Cost of Dementia Care costs to the UK economy is billions and is set to rise further
6 Jan 2020
Shocking new research commissioned by Alzheimer’s Society shows the total cost of dementia to the UK economy has risen by £11 billion to £34.7 billion a year. This cost is set to increase substantially to £94.1 billion with the number of people living with dementia expected to continue to rise by 2040, as stated in a report by the Care Policy and Evaluation Centre (CPEC).